1. Do you think autistic people who also have chronic pain, experience their pain differently from others? If so, why?
2. Do you think autistic people who also have chronic pain, express their pain differently from others? If so, why?
3. If so, could you briefly outline some specific problems that chronic pain causes in autistic people? And if possible, also provide some specific examples about what the problems might be.
4. Do you have personal experience with the chronic pain management services for autistic people in the NHS/UK system? If so, how is your experience?
5. If you identified any disadvantages in the NHS service mentioned above, do you have any suggestions about how this could be addressed?
6. What do you wish other people (e.g. doctors or researchers) knew about how you or autistic people experience pain?
7. Do you feel that pain is linked to any other difficulties (such as sleep, appetite, fatigue, mood, anxiety, increased restricted repetitive behaviours, lower tolerance for uncertainty etc.)?
8. Are there any specific discussions or resources about pain in autistic people (e.g. news articles, blogs etc.) that you think we should be aware of?
9. Do you think autistic people perceive pain differently in other people they see in pain? If so, how?
10. Do you have any thoughts or concerns about how technology could potentially play a role helping autistic people with chronic pain?
If you would be happy to be contacted to discuss any issues you have raised, either by email or online call, please add your email below. If you have any other comments you wish to add, please feel free to contact our network coordinator on this email: abigail.stuart@ndcn.ox.ac.uk
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